H.R. 4138 (112th): Neuromyelitis Optica Consortium Act

Introduced:
Mar 05, 2012 (112th Congress, 2011–2013)
Sponsor:
Rep. Barbara Lee [D-CA9]
Status:
Died (Referred to Committee)
See Instead:
This bill was re-introduced as H.R. 660 on Feb 13, 2013. See H.R. 660 for current action on this subject.

The bill’s title was written by the bill’s sponsor. H.R. stands for House of Representatives bill.

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Status

This bill was introduced on March 5, 2012, in a previous session of Congress, but was not enacted.

Progress
Introduced Mar 05, 2012
Referred to Committee Mar 05, 2012
Cosponsors
none
Committees

House Energy and Commerce

The committee chair determines whether a bill will move past the committee stage.

Full Title

To amend the Public Health Service Act to create a National Neuromyelitis Optica Consortium to provide grants and coordinate research with respect to the causes of, and risk factors associated with, neuromyelitis optica, and for other purposes.

Summary

No summaries available.

Text

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Last updated Mar 05, 2012.
7 pages

Primary Source

View on THOMAS (The Library of Congress)

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Citation

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GovTrack’s Bill Summary

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Library of Congress Summary

The summary below was written by the Congressional Research Service, which is a nonpartisan division of the Library of Congress.

3/5/2012--Introduced.
Neuromyelitis Optica Consortium Act - Expresses the sense of Congress that there is a need to:
(1) establish and coordinate a multicenter research effort to comprehensively study the causes of neuromyelitis optica (NMO) and identify potential biomarkers; and
(2) encourage a collaborative effort among academic medical centers with epidemiological study groups to investigate environmental, nutritional, and genetic factors with respect to, and the pathological and epidemiological characteristics of, NMO. Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), in coordination with the Director of the National Institute on Minority Health and Health Disparities, to establish, administer, and coordinate a National Neuromyelitis Optica Consortium to:
(1) provide five-year grants to eligible consortia to conduct research regarding the causes of, and the risk factors and biomarkers associated with, NMO;
(2) assemble a panel of experts to provide guidance and recommendations for the development of a common study design, standard methods for collecting a minimum data set from study participants, specific analytical methods for examining data, provisions for consensus review of enrolled cases, and an integrated data collection network; and
(3) designate a central laboratory to collect, analyze, and aggregate data with respect to funded research and to make such data and analysis available to researchers.
Requires a consortium (a partnership of two or more universities, health care organizations, or government agencies, or any combination of such entities, serving a designated catchment area), to be eligible for a grant, to demonstrate that:
(1) it has the capability to enroll as research participants a minimum of 25 individuals with a diagnosis of NMO from the consortium's designated catchment area, and
(2) such area does not overlap with the designated catchment area of another consortium already receiving a grant under this Act.

House Republican Conference Summary

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No summary available.

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The bill contains the following citations to other parts of U.S. law:

United States Code

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