S. 1203 (103rd): Office for Rare Disease Research Act of 1994

Jul 01, 1993 (103rd Congress, 1993–1994)
Died (Passed Senate)
Mark Hatfield
Senator from Oregon
Read Text »
Last Updated
Nov 29, 1994
3 pages
Related Bills
S. 184 (104th) was a re-introduction of this bill in a later Congress.

Passed Senate
Last Action: May 18, 1995

H.R. 3577 (identical)

Referred to Committee
Last Action: Nov 19, 1993


This bill was introduced in a previous session of Congress and was passed by the Senate on October 8, 1994 but was never passed by the House.

Introduced Jul 01, 1993
Referred to Committee Jul 01, 1993
Reported by Committee Sep 14, 1994
Passed Senate Oct 08, 1994
Full Title

A bill to establish a Center for Rare Disease Research in the National Institutes of Health, and for other purposes.


No summaries available.

1 cosponsors (1D) (show)

House Energy and Commerce

Senate Health, Education, Labor, and Pensions

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Primary Source

THOMAS.gov (The Library of Congress)

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S. stands for Senate bill.

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GovTrack’s Bill Summary

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Library of Congress Summary

The summary below was written by the Congressional Research Service, which is a nonpartisan division of the Library of Congress.

10/8/1994--Passed Senate amended.
Office for Rare Disease Research Act of 1994 - Amends the Public Health Service Act to establish within the Office of the Director of the National Institutes of Health (NIH) an Office for Rare Disease Research (the Office) to promote and coordinate the conduct of research on rare diseases through a strategic research plan and to establish and manage a rare disease research clinical database.
Directs the Secretary of Health and Human Services to establish an advisory council to provide advice to the Director of the Office concerning carrying out the strategic research plan and other duties under this Act. Requires such Director to:
(1) develop a comprehensive plan for the conduct and support of research on rare diseases;
(2) coordinate and disseminate information among the institutes and the public on rare diseases;
(3) support research training and encourage the participation of a diversity of individuals in the conduct of rare diseases research;
(4) identify projects or research on rare diseases that should be conducted or supported by NIH;
(5) develop and maintain a central database on current government sponsored clinical research projects for rare diseases;
(6) determine the need for registries of research subjects and epidemiological studies of rare disease populations; and
(7) prepare biennial reports on the activities carried out or to be carried out by the Office and submit such reports to the Secretary and the Congress.

House Republican Conference Summary

The summary below was written by the House Republican Conference, which is the caucus of Republicans in the House of Representatives.

No summary available.

House Democratic Caucus Summary

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