S. 1379 (107th): Rare Diseases Act of 2001

Aug 03, 2001 (107th Congress, 2001–2002)
Died (Reported by Committee)
Edward “Ted” Kennedy
Senator from Massachusetts
Read Text »
Last Updated
Dec 18, 2001
22 pages
Related Bills
H.R. 4013 (Related)
Rare Diseases Act of 2002

Signed by the President
Nov 06, 2002


This bill was introduced on October 16, 2001, in a previous session of Congress, but was not enacted.

Introduced Aug 03, 2001
Referred to Committee Aug 03, 2001
Reported by Committee Oct 16, 2001
Full Title

A bill to amend the Public Health Service Act to establish an Office of Rare Diseases at the National Institutes of Health, and for other purposes.


No summaries available.

21 cosponsors (16D, 4R, 1I) (show)

Senate Health, Education, Labor, and Pensions

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Primary Source

THOMAS.gov (The Library of Congress)

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S. stands for Senate bill.

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GovTrack’s Bill Summary

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Library of Congress Summary

The summary below was written by the Congressional Research Service, which is a nonpartisan division of the Library of Congress.

12/18/2001--Reported to Senate amended.
Rare Diseases Act of 2001 -
Title I - National Institutes of Health
Amends the Pubic Health Service Act to: (1) establish an Office of Rare Diseases at the National Institutes of Health; and (2) provide for rare disease regional centers of excellence. Defines rare disease as any disease or condition affecting less than 200,000 persons in the United States.Sets forth the duties of such Office and regional centers, including research and educational duties.
Title II - Food and Drug Administration
Amends the Orphan Drug Act to authorize a specified amount of appropriations for FY 2002 and such sums as may be necessary for subsequent fiscal years for grants and contracts for the development of drugs for rare diseases and conditions.

House Republican Conference Summary

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No summary available.

House Democratic Caucus Summary

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