S. 306 (109th): Genetic Information Nondiscrimination Act of 2005

Introduced:
Feb 07, 2005 (109th Congress, 2005–2006)
Status:
Died (Passed Senate)
See Instead:

H.R. 1227 (same title)
Referred to Committee — Mar 10, 2005

Sponsor
Olympia Snowe
Senator from Maine
Party
Republican
Text
Read Text »
Last Updated
Feb 17, 2005
Length
82 pages
Related Bills
S. 1053 (108th) was a previous version of this bill.

Passed Senate
Last Action: Oct 14, 2003

S. 358 (110th) was a re-introduction of this bill in a later Congress.

Reported by Committee
Last Action: Jan 31, 2007

 
Status

This bill was introduced in a previous session of Congress and was passed by the Senate on February 17, 2005 but was never passed by the House.

Progress
Introduced Feb 07, 2005
Referred to Committee Feb 07, 2005
Reported by Committee Feb 09, 2005
Passed Senate Feb 17, 2005
 
Full Title

A bill to prohibit discrimination on the basis of genetic information with respect to health insurance and employment.

Summary

No summaries available.

Votes
Feb 17, 2005 3 p.m.
Bill Passed 98/0

 
Primary Source

THOMAS.gov (The Library of Congress)

GovTrack gets most information from THOMAS, which is updated generally one day after events occur. Activity since the last update may not be reflected here. Data comes via the congress project.

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Notes

S. stands for Senate bill.

A bill must be passed by both the House and Senate in identical form and then be signed by the president to become law.

The bill’s title was written by its sponsor.

GovTrack’s Bill Summary

We don’t have a summary available yet.

Library of Congress Summary

The summary below was written by the Congressional Research Service, which is a nonpartisan division of the Library of Congress.


2/17/2005--Passed Senate amended.
Genetic Information Nondiscrimination Act of 2005 -
Title I - Genetic Nondiscrimination in Health Insurance
Section 101 -
Amends the Employee Retirement Income Security Act of 1974 (ERISA) and the Public Health Service Act (PHSA) to specify that genetic information that an issuer of group health insurance may not establish as an enrollment eligibility factor includes information about a request for or receipt of genetic services by an individual or family member.
Prohibits a group health plan or a health insurance issuer from:
(1) adjusting premiums on the basis of genetic information; or
(2) requesting or requiring an individual or a family member of such individual to undergo a genetic test.
Applies such provisions to small group health plans.
Allows a participant or beneficiary to bring a civil action for violations of such prohibitions prior to the exhaustion of administrative remedies if it is demonstrated to the court that exhaustion of remedies would cause irreparable harm to the health of the participant or beneficiary. Allows a court to award equitable relief in such an action by retroactively reinstating coverage or assessing an administrative penalty.
Authorizes the appropriate secretary to impose a penalty for any failure of a group health plan to meet the requirements of this Act. Limits such penalties if they are the result of reasonable cause and not willful neglect.
Section 102 -
Amends PHSA to prohibit discrimination on the basis of genetic information for health insurance offered in the individual market in the same manner as such discrimination is prohibited for group coverage.
Applies such requirements to non-Federal governmental plans.
Section 103 -
Amends title XVIII (Medicare) of the Social Security Act to prohibit an issuer of a Medicare supplemental policy, on the basis of genetic information, from: (1) denying or conditioning the issuance or effectiveness of a policy for an eligible individual; or (2) discriminating in the pricing of the policy, including the adjustment rates, for an eligible individual.
Prohibits an issuer of a Medicare supplemental policy from requesting or requiring an individual or a family member to undergo a genetic test.
Section 104 -
Applies health information privacy regulations to the use and disclosure of genetic information.
Prohibits a group health plan, a health insurance issuer, or issuer of a Medicare supplemental policy from:
(1) using or disclosing genetic information for purposes of underwriting, determining enrollment eligibility, rating premiums, or creating, renewing, or replacing a plan, contract, or coverage for health insurance or health benefits;
(2) requesting, requiring, or purchasing genetic information for such purposes; or
(3) requesting, requiring, or purchasing genetic information concerning a participant, beneficiary, or enrollee prior to the enrollment of such individual under the plan, coverage, or policy.
Applies privacy standards only to genetic information that is individually-identifiable health information.
Sets forth penalties for violations.
Section 105 -
Requires the Secretary of the Treasury, the Secretary of Health and Human Services, and the Secretary of Labor to ensure that such regulations are administered so as to have the same effect and to coordinate an enforcement strategy.
Title II - Prohibiting Employment Discrimination on the Basis of Genetic Information
Section 202 -
Prohibits, as an unlawful employment practice, an employer, employment agency, labor organization, or joint labor-management committee from discriminating against an employee, individual, or member on the basis of genetic information, including by:
(1) for an employer, failing to hire or discharging an employee or otherwise discriminating against an employee with respect to the compensation, terms, conditions, or privileges of employment;
(2) for an employment agency, failing or refusing to refer an individual for employment;
(3) for a labor organization, excluding or expelling a member from the organization;
(4) for an employment agency, labor organization, or joint labor-management committee, causing or attempting to cause an employer to discriminate against a member in violation of this Act; or
(5) for an employer, labor organization, or joint labor-management committee, discriminating against an individual in admission to, or employment in, any program established to provide apprenticeships or other training or retraining.
Prohibits, as an unlawful employment practice, an employer, employment agency, labor organization, or joint labor-management committee from limiting, segregating, or classifying employees, individuals, or members on the basis of genetic information in any way that would deprive such individuals of employment opportunities or otherwise adversely affect their status as an employee.
Prohibits, as an unlawful employment practice, an employer, employment agency, labor organization, or joint labor-management committee from requesting, requiring, or purchasing an employee's genetic information, except for certain purposes, which include where:
(1) such information is requested or required to comply with the certification provisions of the Family and Medical Leave Act of 1993 or such requirements under State family and medical leave laws; and
(2) the information involved is to be used for genetic monitoring of the biological effects of toxic substances in the workplace.
Section 206 -
Requires an employer, employment agency, labor organization, or joint labor-management committee that possesses any genetic information about an employee or member to maintain such information in separate files and treat such information as a confidential medical record.
Prohibits an employer, employment agency, labor organization, or joint labor-management committee from disclosing such genetic information, except:
(1) to the employee or member upon request;
(2) to an occupational or other health researcher;
(3) in response to a court order;
(4) to a government official investigating compliance with this Act if the information is relevant to the investigation; or
(5) in connection with the employee's compliance with the certification provisions of the Family and Medical Leave Act of 1993 or such requirements under State family and medical leave laws.
Section 207 -
Sets forth provisions regarding enforcement of this Act.
Section 208 -
Provides that disparate impact on the basis of genetic information does not establish a cause of action under this Act.
Establishes the Genetic Nondiscrimination Study Commission six years after enactment of this Act to review the developing science of genetics and to make recommendations to Congress regarding whether to provide a disparate impact cause of action under this Act. Requires the Commission to submit to Congress a report summarizing its findings and making recommendations for legislation. Authorizes appropriations to the Equal Employment Opportunity Commission (EEOC) to carry out this section.
Section 212 -
Authorizes appropriations.
Title III - Miscellaneous Provision
Section 301 -
Provides that if any provision of this Act, an amendment made by this Act, or the application of such provision or amendment to any person or circumstance is held to be unconstitutional, the remainder of this Act shall not be affected.

House Republican Conference Summary

The summary below was written by the House Republican Conference, which is the caucus of Republicans in the House of Representatives.


No summary available.

House Democratic Caucus Summary

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