H.R. 493 (110th): Genetic Information Nondiscrimination Act of 2008

Introduced:
Jan 16, 2007 (110th Congress, 2007–2009)
Status:
Signed by the President
Slip Law:
This bill became Pub.L. 110-233.
Sponsor
Louise Slaughter
Representative for New York's 28th congressional district
Party
Democrat
Text
Read Text »
Last Updated
May 02, 2008
Length
42 pages
Related Bills
S. 358 (identical)

Reported by Committee
Last Action: Jan 31, 2007

H.R. 1424 (Related)
Paul Wellstone Mental Health and Addiction Equity Act of 2007

Signed by the President
Oct 03, 2008

 
Status

This bill was enacted after being signed by the President on May 21, 2008.

Progress
Introduced Jan 16, 2007
Referred to Committee Jan 16, 2007
Reported by Committee Feb 14, 2007
Passed House Apr 25, 2007
Passed Senate with Changes Apr 24, 2008
House Agreed to Changes May 01, 2008
Signed by the President May 21, 2008
 
Full Title

To prohibit discrimination on the basis of genetic information with respect to health insurance and employment.

Summary

No summaries available.

Votes
On Motion to Suspend the Rules and Pass, as Amended
Apr 25, 2007 4:32 p.m.
Passed 420/3
Apr 24, 2008 2:14 p.m.
Bill Passed 95/0
On the Senate Amendment
May 01, 2008 12:40 p.m.
Passed 414/1

Cosponsors
224 cosponsors (129D, 95R) (show)
Committees

House Education and the Workforce

House Energy and Commerce

Health

House Ways and Means

The committee chair determines whether a bill will move past the committee stage.

 
Primary Source

THOMAS.gov (The Library of Congress)

GovTrack gets most information from THOMAS, which is updated generally one day after events occur. Activity since the last update may not be reflected here. Data comes via the congress project.

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Notes

H.R. stands for House of Representatives bill.

A bill must be passed by both the House and Senate in identical form and then be signed by the president to become law.

GovTrack’s Bill Summary

We don’t have a summary available yet.

Library of Congress Summary

The summary below was written by the Congressional Research Service, which is a nonpartisan division of the Library of Congress.


5/21/2008--Public Law.
Genetic Information Nondiscrimination Act of 2008 -
Title I - Genetic Nondiscrimination in Health Insurance
Section 101 -
Amends the Employee Retirement Income Security Act of 1974 (ERISA), the Public Health Service Act (PHSA), and the Internal Revenue Code to prohibit a group health plan from adjusting premium or contribution amounts for a group on the basis of genetic information.
Prohibits a group health plan from requesting or requiring an individual or family member of an individual from undergoing a genetic test.
Provides that such prohibition does not:
(1) limit the authority of a health care professional to request an individual to undergo a genetic test; or
(2) preclude a group health plan from obtaining or using the results of a genetic test in making a determination regarding payment.
Requires the plan to request only the minimum amount of information necessary to accomplish the intended purpose.
Allows a group health plan to request, but not require, a participant or beneficiary to undergo a genetic test for research purposes if certain requirements are met, including:
(1) the plan clearly indicates that compliance is voluntary and that noncompliance will have no effect on enrollment status or premium or contribution amounts;
(2) no genetic information collected or acquired is used for underwriting purposes; and
(3) the plan notifies the Secretary of Health and Human Services that it is conducting activities pursuant to this exception and includes a description of the activities.
Prohibits a group health plan from requesting, requiring, or purchasing genetic information: (1) for underwriting purposes; or (2) with respect to any individual prior to such individual's enrollment in connection with such enrollment (provides that incidentally obtains such information is not a violation).
Applies such prohibitions to all group health plans, including small group health plans.
Provides that any reference to genetic information concerning an individual or family member includes genetic information of: (1) a fetus carried by a pregnant woman; and (2) an embryo legally held by an individual or family member utilizing an assisted reproductive technology.
Authorizes a penalty against any sponsor of a group health plan for any failure to meet requirements of this Act. Allows a waiver or limitation on such penalty if the failure was not discovered after exercising reasonable diligence or was due to reasonable cause.
Section 102 -
Amends the PHSA to prohibit:
(1) a health insurance issuer offering health insurance coverage in the individual market from establishing eligibility rules for enrollment based on genetic information;
(2) discrimination on the basis of genetic information for health insurance offered in the individual market in the same manner as such discrimination is prohibited for group coverage; and
(3) the imposition by a health insurance issuer offering health insurance coverage in the individual market of a preexisting condition exclusion on the basis of genetic information.
Applies such requirements to nonfederal governmental plans.
Section 104 -
Amends title XVIII (Medicare) of the Social Security Act (SSA) to prohibit an issuer of a Medicare supplemental policy, on the basis of genetic information, from: (1) denying or conditioning the issuance or effectiveness of the policy, including the imposition of any exclusion of benefits based on a preexisting condition; or (2) discriminating in the pricing of the policy, including the adjustment of premium rates.
Prohibits an issuer of a Medicare supplemental policy from: (1) requesting or requiring an individual or a family member to undergo a genetic test; or (2) requesting, requiring, or purchasing genetic information for underwriting purposes or for any individual prior to enrollment.
Section 105 -
Amends title XI (General Provisions, Peer Review, and Administrative Simplification) of SSA to require the Secretary of Health and Human Services to revise Health Insurance Portability and Accountability Act of 1996 (HIPAA) privacy regulations to: (1) treat genetic information as health information; and (2) prohibit the use or disclosure by a group health plan, health insurance coverage, or Medicare supplemental policy of genetic information about an individual for underwriting purposes.
Section 106 -
Requires the Secretaries of Health and Human Services, Labor, and the Treasury to ensure that their regulations, rulings, and interpretations under this title are administered so as to have the same effect at all times and that they adopt a coordinated enforcement strategy.
Title II - Prohibiting Employment Discrimination on the Basis of Genetic Information
Section 202 -
Prohibits, as an unlawful employment practice, an employer, employment agency, labor organization, or joint labor-management committee from discriminating against an employee, individual, or member because of genetic information, including:
(1) for an employer, by failing to hire or discharging an employee or otherwise discriminating against an employee with respect to the compensation, terms, conditions, or privileges of employment;
(2) for an employment agency, by failing or refusing to refer an individual for employment;
(3) for a labor organization, by excluding or expelling a member from the organization;
(4) for an employment agency, labor organization, or joint labor-management committee, by causing or attempting to cause an employer to discriminate against a member in violation of this Act; or
(5) for an employer, labor organization, or joint labor-management committee, by discriminating against an individual in admission to, or employment in, any program established to provide apprenticeships or other training or retraining.
Prohibits, as an unlawful employment practice, an employer, employment agency, labor organization, or joint labor-management committee from limiting, segregating, or classifying employees, individuals, or members because of genetic information in any way that would deprive or tend to deprive such individuals of employment opportunities or otherwise adversely affect their status as employees.
Prohibits, as an unlawful employment practice, an employer, employment agency, labor organization, or joint labor-management committee from requesting, requiring, or purchasing an employee's genetic information, except for certain purposes, which include where:
(1) such information is requested or required to comply with certification requirements of family and medical leave laws;
(2) the information involved is to be used for genetic monitoring of the biological effects of toxic substances in the workplace; and
(3) the employer conducts DNA analysis for law enforcement purposes as a forensic laboratory or for purposes of human remains identification.
Section 206 -
Requires an employer, employment agency, labor organization, or joint labor-management committee that possesses any genetic information about an employee or member to maintain such information in separate files and treat such information as a confidential medical record.
Prohibits an employer, employment agency, labor organization, or joint labor-management committee from disclosing such genetic information, except:
(1) to the employee or member upon request;
(2) to an occupational or other health researcher;
(3) in response to a court order;
(4) to a government official investigating compliance with this Act if the information is relevant to the investigation;
(5) in connection with the employee's compliance with the certification provisions of the Family and Medical Leave Act of 1993 or such requirements under state family and medical leave laws; or
(6) to a public health agency.
Section 207 -
Sets forth provisions regarding enforcement of this Act.
Section 208 -
Provides that disparate impact on the basis of genetic information does not establish a cause of action under this Act.
Establishes the Genetic Nondiscrimination Study Commission six years after enactment of this Act to review the developing science of genetics and to make recommendations to Congress regarding whether to provide a disparate impact cause of action under this Act. Authorizes appropriations to the Equal Employment Opportunity Commission (EEOC) to carry out this section.
Section 212 -
Authorizes appropriations.
Title III - Miscellaneous Provisions
Section 301 -
Provides that if any provision of this Act, an amendment made by this Act, or the application of such provision or amendment to any person or circumstance is held to be unconstitutional, the remainder of this Act shall not be affected.
Section 302 -
Amends the Fair Labor Standards Act of 1938 to increase the maximum employer penalty for violations involving oppressive child labor provisions or certain child labor safety requirements. Establishes an additional civil penalty for any such violation that causes the death or serious injury of an employee under the age of 18, which may be doubled for a repeated or willful violation.
Defines "serious injury" as: (1) permanent loss or substantial impairment of one of the senses or of the function of a bodily member, organ, or mental faculty; or (2) permanent paralysis or substantial impairment that causes loss of movement or mobility of a body part.
Increases the maximum civil penalty for any repeated or willful violation of minimum wage or maximum hours requirements.

House Republican Conference Summary

The summary below was written by the House Republican Conference, which is the caucus of Republicans in the House of Representatives.


No summary available.

House Democratic Caucus Summary

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