H. R. 5979
IN THE HOUSE OF REPRESENTATIVES
May 6, 2008
Mr. King of New York introduced the following bill; which was referred to the Committee on Energy and Commerce
To amend the Public Health Service Act to provide for the national collection of data on stillbirths in a standardized manner, and for other purposes.
This Act may be cited as the
Stillbirth Awareness and Research Act
Findings; sense of Congress
The Congress finds the following:
While States issue both a birth and a death certificate when a baby lives for only moments outside the womb, most States issue only a death certificate in the case of a stillbirth.
Almost half of the States have enacted
legislation called MISSing Angels bills allowing a State to issue a
Certificate of Birth Resulting in Stillbirth, and many other
States are considering such legislation.
Sense of Congress
It is the sense of
the Congress that more States should enact legislation that allows the issuance
Certificate of Birth Resulting in Stillbirth when the
pregnancy results in a stillbirth.
National stillbirth registry
Part B of title III of the Public Health Service Act (42 U.S.C. 243 et seq.) is amended by inserting after section 317S the following:
National stillbirth registry
For the purposes described in subsection
(b), the Secretary, acting through the Director of the Centers for Disease
Control and Prevention, shall, by grant or contract, establish and maintain a
scientific registry of stillbirths in the United States (in this section
referred to as the
The purposes of the registry are—
to provide a national repository for reporting and maintaining in a consistent manner data on stillbirths; and
to make such data available for research on the causes and prevention of stillbirths.
The registry shall include, with respect to each stillbirth, information on the stillborn fetus and the mother’s health and pregnancy as collected and submitted by States on the U.S. Standard Report of Fetal Death. In submitting such information, the Director of the Centers for Disease Control and Prevention shall require States to use the standard definition of stillbirth and the standard protocol for stillbirth data collection and surveillance as determined pursuant to subsection (d).
Determination of standard stillbirth definition and protocol
For purposes of this section, the Secretary shall provide for the development of the following:
A standard definition of stillbirth.
A standard protocol for stillbirth data collection and surveillance.
The Secretary shall ensure that the standard definition and protocol described paragraph (1) are developed under such paragraph in a manner that ensures the consultation of representatives of health care organizations, State and local governments, and other interested entities specified by the Secretary.
Sense of Congress on NIH funding for stillbirth research
It is the sense of the Congress that the Director of the National Institutes of Health should increase the allocation of funds and other resources for stillbirth research.
National public awareness campaign
The Secretary of Health and Human Services shall carry out a national campaign to increase public awareness and knowledge of stillbirths and public and State awareness of the standard stillbirth definition and standard protocol for stillbirth data collection and surveillance under section 306(h)(3) of the Public Health Service Act, as added by section 3.
Measures To reduce the incidence of stillbirths
Activities under the national campaign under subsection (a) shall include—
the dissemination of information on measures for mothers to maintain a healthy pregnancy and assess fetal health;
the dissemination of information on good prenatal care practices such as not drinking alcohol or smoking; and
the promotion of fetal movement awareness and taking proactive steps to monitor a baby’s movement beginning at approximately 28 weeks into the pregnancy.