H.R. 3071 (111th): Everson Walls and Ron Springs Gift for Life Act of 2009

111th Congress, 2009–2010. Text as of Jun 26, 2009 (Introduced).

Status & Summary | PDF | Source: GPO

I

111th CONGRESS

1st Session

H. R. 3071

IN THE HOUSE OF REPRESENTATIVES

June 26, 2009

introduced the following bill; which was referred to the Committee on Energy and Commerce

A BILL

To amend the Public Health Service Act to establish a National Organ and Tissue Donor Registry Resource Center, to authorize grants for State organ and tissue donor registries, and for other purposes.

1.

Short title

This Act may be cited as the Everson Walls and Ron Springs Gift for Life Act of 2009.

2.

National Organ and Tissue Donor Registry Resource Center

Part H of title III of the Public Health Service Act (42 U.S.C. 273 et seq.) is amended by inserting after section 371A the following:

371B.

National Organ and Tissue Donor Registry Resource Center

(a)

In general

The Secretary, acting through the Administrator of the Health Resources and Services Administration, shall establish a National Organ and Tissue Donor Registry Resource Center (referred to in this section as the Center).

(b)

Duties

The Center shall—

(1)

advance the development, expansion, and evaluation of State organ and tissue donor registries;

(2)

facilitate timely access to and exchange of accurate donor information between State registries 7 days each week on a 24-hour basis;

(3)

ensure that State organ and tissue donor registries funded through section 371C are in compliance with the requirements described in such section, including the operating standards described in section 371C(d);

(4)

provide technical assistance to States for the establishment and operation of State organ and tissue registries; and

(5)

maintain a registry information clearinghouse, including by maintaining a Web site, to collect, synthesize, and disseminate best practices information about organ and tissue donor registries.

(c)

Authorization of appropriations

There is authorized to be appropriated to carry out this section $5,000,000 for each of fiscal years 2010 through 2014.

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3.

Grants for State organ and tissue donor registries

Part H of title III of the Public Health Service Act (42 U.S.C. 273 et seq.) is amended by inserting after section 371B, as inserted by section 2, the following:

371C.

Grants for State organ and tissue donor registries

(a)

Program authorized

The Secretary shall award grants or cooperative agreements to eligible entities to support the development, enhancement, expansion, and evaluation of State organ and tissue donor registries.

(b)

Definition

In this section, the term eligible entity means a State agency or a State contracted entity.

(c)

Use of funds

As a condition on the receipt of a grant or cooperative agreement under this section, an eligible entity shall agree to use the grant or cooperative agreement—

(1)

to develop, expand, or maintain a State organ and tissue donor registry; and

(2)

to establish benchmarks for improvement in organ and tissue donation in the State.

(d)

Operating standards

As a condition on the receipt of a grant or cooperative agreement under this section for a State organ and tissue donor registry, an eligible entity shall agree to maintain the registry in accordance with the following:

(1)

The registry must allow a donor or any other person authorized by the donor to include in the registry a statement or symbol that the donor has made, amended, or revoked an anatomical gift.

(2)

The registry must be accessible to any qualified organ procurement organization described in section 371(b) to allow the organization to obtain relevant information on the registry to determine, at or near the death of the donor or a prospective donor, whether the donor or prospective donor has made, amended, or revoked an anatomical gift.

(3)

The registry must be accessible as described in paragraphs (1) and (2) 7 days each week on a 24-hour basis.

(4)

The registry must ensure that personally identifiable information on the registry about a donor or prospective donor may not be used or disclosed without the express consent of the donor or prospective donor for any purpose other than to determine, at or near the death of the donor or prospective donor, whether the donor or prospective donor has made, amended, or revoked an anatomical gift.

(e)

Application

To seek a grant or cooperative agreement under this section, an entity shall submit an application to the Secretary at such time, in such manner, and containing such information as the Secretary may reasonably require.

(f)

Report

As a condition on the receipt of a grant or cooperative agreement under this section, not later than 180 days after receipt of the grant or cooperative agreement, and every 180 days thereafter (through the date of completion of the activities funded through the grant or cooperative agreement), an eligible entity shall prepare and submit a report to the Secretary that—

(1)

describes the manner in which such entity has used amounts received through the grant or cooperative agreement; and

(2)

assesses initiatives that may be replicated in other States.

(g)

Authorization of appropriations

There is authorized to be appropriated to carry out this section $10,000,000 for each of fiscal years 2010 through 2014.

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4.

Study on feasibility of establishing a living donor database

Section 371A of the Public Health Service Act (42 U.S.C. 273a) is amended—

(1)

by striking The Secretary may establish and inserting (a) In general.—The Secretary may establish; and

(2)

by adding at the end the following:

(b)

Study

Not later than 1 year after the date of the enactment of the Everson Walls and Ron Springs Gift for Life Act of 2009, the Comptroller General of the United States shall—

(1)

complete a study to determine the feasibility of establishing a living donor database for the purpose of tracking the short- and long-term health effects for such donors associated with living organ donation; and

(2)

submit a report to the Congress on the results of such study.

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