H.R. 2123 (112th): Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011

Jun 03, 2011 (112th Congress, 2011–2013)
Died (Referred to Committee)
See Instead:

S. 1167 (same title)
Referred to Committee — Jun 09, 2011

Elton Gallegly
Representative for California's 24th congressional district
Read Text »
Last Updated
Jun 03, 2011
16 pages
Related Bills
S. 1167 (Related)
Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011

Referred to Committee
Last Action: Jun 09, 2011


This bill was introduced on June 3, 2011, in a previous session of Congress, but was not enacted.

Introduced Jun 03, 2011
Referred to Committee Jun 03, 2011
Full Title

To amend the Public Health Service Act to improve the diagnosis and treatment of hereditary hemorrhagic telangiectasia, and for other purposes.


No summaries available.

34 cosponsors (26D, 8R) (show)

House Energy and Commerce


House Ways and Means


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Primary Source

THOMAS.gov (The Library of Congress)

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H.R. stands for House of Representatives bill.

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GovTrack’s Bill Summary

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Library of Congress Summary

The summary below was written by the Congressional Research Service, which is a nonpartisan division of the Library of Congress.

Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a vascular genetic bleeding disorder that causes abnormalities of the blood vessels) initiative to assist in coordinating activities to improve early detection, screening, and treatment of people who suffer from HHT, focusing on advancing research on the causes, diagnosis, and treatment of HHT and increasing physician and public awareness of HHT.
Directs the Secretary to establish the HHT Coordinating Committee to develop and coordinate implementation of a plan to advance research and understanding of HHT, including by: (1) conducting or supporting research across relevant National Institutes of Health (NIH) institutes, and (2) conducting evaluations and making recommendations regarding the prioritization and award of NIH research grants relating to HHT.
Requires the Director of the Centers for Disease Control and Prevention (CDC) to carry out activities with respect to HHT, including conducting population screening and establishing an HHT resource center to provide comprehensive education on, and disseminate information about, HHT to health professionals, patients, industry, and the public.
Sets forth requirements for HHT population screening, including requiring the Director of CDC to designate and provide funding for HHT Treatment Centers of Excellence.
Requires the Administrator of the Centers for Medicare & Medicaid Services (CMS) to award grants for: (1) an analysis of the Medicare Provider Analysis and Review (MEDPAR) file to develop preliminary estimates on the totals costs to Medicare for items, services, and treatments for HHT; and (2) recommendations regarding an enhanced data collection protocol to permit a more precise determination of such costs.

House Republican Conference Summary

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No summary available.

House Democratic Caucus Summary

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