H.Res. 194: Expressing support for designation of the month of May as Williams Syndrome Awareness Month.

113th Congress, 2013–2015. Text as of Apr 26, 2013 (Introduced).

Status & Summary | PDF | Source: GPO and Cato Institute Deepbills

IV

113th CONGRESS

1st Session

H. RES. 194

IN THE HOUSE OF REPRESENTATIVES

April 26, 2013

submitted the following resolution; which was referred to theCommittee on Oversight and Government Reform

RESOLUTION

Expressing support for designation of the month of May as Williams Syndrome Awareness Month.

Whereas Williams syndrome is a rare genetic condition that is present at birth, affects as many as 30,000 individuals in the United States and is characterized by lifelong medical problems, including cardiovascular disease, developmental delays, and learning disabilities;

Whereas more than 5,000 individuals have signed a petition requesting thatCongresssupport the Williams Syndrome Association’s efforts to designate May as Williams Syndrome Awareness Month;

Whereas the Williams Syndrome Association (WSA), founded in 1982, is a non-profit organization and the most comprehensive resource for people and families living with Williams syndrome as well as for doctors, researchers and educators. And through its efforts, from raising public awareness, to funding critical new research, and providing valuable information and support to families, the WSA has improved the quality of life and futures of those affected by Williams syndrome;

Whereas to generate awareness about Williams syndrome and raise funding for critical WSA programs and initiatives, the WSA has organized May as Williams Syndrome Awareness Month which includesWalks for Williamsand other events all across the United States; and

Whereas the Williams Syndrome Association and the families and friends of those with Williams should be commended for their hard work, compassion, and courage for educating the country about this rare disorder: Now, therefore, be it

That theHouse of Representativessupports the goals and ideals of Williams Syndrome Awareness Month.