IN THE SENATE OF THE UNITED STATES
July 8, 2015
Ms. Collins (for herself, Ms. Baldwin, Ms. Ayotte, Mr. Bennet, and Ms. Mikulski) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions
To provide for the establishment and maintenance of a National Family Caregiving Strategy, and for other purposes.
This Act may be cited as the
Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2015 or the
RAISE Family Caregivers Act.
In this Act:
The term Advisory Council means the Family Caregiving Advisory Council convened under section 4.
The term family caregiver means a relative, partner, friend, or neighbor who has a significant relationship with, and who provides a broad range of assistance for, a person with a chronic or other health condition, disability, or functional limitation.
The term Secretary means the Secretary of Health and Human Services.
The term Strategy means the National Family Caregiving Strategy established, maintained, and updated under section 3.
National Family Caregiving Strategy
The Secretary, in consultation with the heads of other appropriate Federal agencies, shall develop, maintain, and periodically update a National Family Caregiving Strategy.
The Strategy shall identify specific actions that Federal, State, and local governments, communities, health care, long-term services and supports and other providers, employers, and others can take to recognize and support family caregivers in a culturally competent manner, including with respect to the following:
Promoting greater adoption of person- and family-centered care in all health and long-term services and supports settings, with the person receiving services and supports and the family caregiver (as appropriate) at the center of care teams.
Assessment and service planning (including care transitions and coordination) involving family caregivers and care recipients.
Training and other supports.
Information, education, referral, and care coordination, including hospice, palliative care, and advance planning services.
Workplace policies and supports that allow family caregivers to remain in the workforce.
Responsibilities of the Secretary
The Secretary, in carrying out this section, shall be responsible for the following:
Collecting and making publically available information, including evidence-based or promising practices and innovative models (both domestically and internationally) regarding the provision of care by family caregivers or support for family caregivers.
Coordinating Federal Government programs and activities to recognize and support family caregivers while ensuring maximum effectiveness and avoiding unnecessary duplication.
Providing technical assistance, such as best practices and information sharing, to State or local efforts, as appropriate, to support family caregivers.
Addressing disparities in recognizing and supporting family caregivers and meeting the needs of the diverse family caregiving population.
Assessing all Federal programs regarding family caregivers, including with respect to funding levels.
Initial strategy; updates
The Secretary shall—
not later than 18 months after the date of enactment of this Act, develop, publish, and submit to Congress the initial Strategy incorporating the items addressed in the Advisory Council's report in section 4(d)(2) and other priority actions for recognizing and supporting family caregivers; and
not less than annually, update, republish, and submit to Congress the Strategy, taking into account the most recent annual report submitted under section 4(d)(1)—
to reflect new developments, challenges, opportunities, and solutions; and
to assess progress in implementation of the Strategy and, based on the results of such assessment, recommend priority actions for such implementation.
Process for public input
The Secretary shall establish a process for public input to inform the development of, and updates to, the Strategy, including a process for the public to submit recommendations to the Advisory Council and an opportunity for public comment on the proposed Strategy.
Nothing in this Act preempts any authority of a State or local government to recognize or support family caregivers.
Family Caregiving Advisory Council
The Secretary shall convene a Family Caregiving Advisory Council to provide advice to the Secretary on recognizing and supporting family caregivers.
The members of the Advisory Council shall consist of—
the Federal members under paragraph (2); and
the appointed members under paragraph (3).
The Federal members of the Advisory Council shall consist of the following:
The Administrator of the Centers for Medicare & Medicaid Services (or the Administrator's designee).
The Administrator of the Administration for Community Living (or the Administrator's designee who has experience in both aging and disability).
The Assistant Secretary for the Administration for Children and Families (or the Assistant Secretary's designee).
The Secretary of Veterans Affairs (or the Secretary's designee).
The Secretary of Labor (or the Secretary's designee).
The Secretary of the Treasury (or the Secretary's designee).
The National Coordinator for Health Information Technology (or the National Coordinator's designee).
The heads of other Federal departments or agencies (or their designees), as appointed by the President or the Chair of the Advisory Council.
In addition to the Federal members under paragraph (2), the Secretary shall appoint not more than 15 members of the Advisory Council who are not representatives of Federal departments or agencies and who shall include at least one representative of each of the following:
Older adults with long-term services and supports needs, including older adults facing disparities.
Individuals with disabilities.
Advocates for family caregivers, older adults with long-term services and supports needs, and individuals with disabilities.
Health care and social service providers.
Long-term services and supports providers.
Direct care workers or advocates for such workers.
State and local officials.
As appropriate, other experts in family caregiving.
The Secretary shall ensure that the membership of the Advisory Council reflects the diversity of—
the overall population; and
The Advisory Council shall meet quarterly. Meetings of the Advisory Council shall be open to the public.
Advisory Council annual reports
Not later than 15 months after the date of enactment of this Act, and annually thereafter, the Advisory Council shall submit to the Secretary and Congress a report concerning the development, maintenance, and updating of the Strategy and the implementation thereof, including a description of the outcomes of the recommendations and priorities under paragraph (2), as appropriate. Such report shall be made publically available by the Advisory Council.
The Advisory Council's initial report under paragraph (1) shall include—
an inventory and assessment of all federally funded efforts to recognize and support family caregivers and the outcomes of such efforts, including analyses of the extent to which federally funded efforts are reaching family caregivers and gaps in such efforts;
recommendations for priority actions—
to improve and better coordinate programs; and
to deliver services based on the performance, mission, and purpose of a program while eliminating redundancies and ensuring the needs of family caregivers are met;
recommendations to reduce the financial impact and other challenges of caregiving on family caregivers; and
an evaluation of how family caregiving impacts the Medicare program, and Medicaid program, and other Federal programs.
Sharing of data
The heads of Federal departments and agencies, as appropriate, shall share with the Secretary any data that is—
maintained by the respective department or agency; and
needed by the Secretary to prepare the initial and updated Strategies under section 3(d).
The authority and obligations established by this Act shall terminate on December 31, 2030.