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H.R. 1058: Autism Collaboration, Accountability, Research, Education, and Support Act of 2019

The text of the bill below is as of Sep 21, 2019 (Passed Congress).


I

One Hundred Sixteenth Congress of the United States of America

At the First Session

H. R. 1058

AN ACT

To amend the Public Health Service Act to enhance activities of the National Institutes of Health with respect to research on autism spectrum disorder and enhance programs relating to autism, and for other purposes.

1.

Short title

This Act may be cited as the Autism Collaboration, Accountability, Research, Education, and Support Act of 2019 or the Autism CARES Act of 2019.

2.

Expansion, intensification, and coordination of activities of the NIH with respect to research on autism spectrum disorder

Section 409C of the Public Health Service Act (42 U.S.C. 284g) is amended—

(1)

in subsection (a)(1)—

(A)

in the first sentence, by striking and toxicology and inserting toxicology, and interventions to maximize outcomes for individuals with autism spectrum disorder; and

(B)

by striking the second sentence and inserting the following: Such research shall investigate the causes (including possible environmental causes), diagnosis or ruling out, early and ongoing detection, prevention, services across the lifespan, supports, intervention, and treatment of autism spectrum disorder, including dissemination and implementation of clinical care, supports, interventions, and treatments.;

(2)

in subsection (b)—

(A)

in paragraph (2)—

(i)

in the second sentence, by striking cause and all that follows through disorder and inserting causes, diagnosis, early and ongoing detection, prevention, and treatment of autism spectrum disorder across the lifespan; and

(ii)

in the third sentence, by striking neurobiology and all that follows through the period and inserting neurobiology, genetics, genomics, psychopharmacology, developmental psychology, behavioral psychology, and clinical psychology.; and

(B)

in paragraph (3), by adding at the end the following:

(D)

Reducing disparities

The Director may consider, as appropriate, the extent to which a center can demonstrate availability and access to clinical services for youth and adults from diverse racial, ethnic, geographic, or linguistic backgrounds in decisions about awarding grants to applicants which meet the scientific criteria for funding under this section.

.

3.

Programs relating to autism

(a)

Developmental disabilities surveillance and research program

Section 399AA of the Public Health Service Act (42 U.S.C. 280i) is amended—

(1)

in subsection (a)(1), by striking adults on autism spectrum disorder and inserting adults with autism spectrum disorder;

(2)

in subsection (a)(2)—

(A)

by striking State and local public health officials and inserting State, local, and Tribal public health officials;

(B)

by striking or other developmental disabilities and inserting and other developmental disabilities;

(3)

in subsection (a)(3), by striking a university, or any other educational institution and inserting a university, any other educational institution, an Indian tribe, or a tribal organization;

(4)

in subsection (b)(2)(A), by striking relevant State and local public health officials, private sector developmental disability researchers, and advocates for individuals with developmental disabilities and inserting State, local, and Tribal public health officials, private sector developmental disability researchers, advocates for individuals with autism spectrum disorder, and advocates for individuals with other developmental disabilities;

(5)

in subsection (d)—

(A)

by redesignating paragraphs (1) and (2) as paragraphs (2) and (3), respectively; and

(B)

by inserting before paragraph (2), as so redesignated, the following new paragraph:

(1)

Indian tribe; tribal organization

The terms Indian tribe and tribal organization have the meanings given such terms in section 4 of the Indian Health Care Improvement Act.

; and

(6)

in subsection (e), by striking 2019 and inserting 2024.

(b)

Autism education, early detection, and intervention

Section 399BB of the Public Health Service Act (42 U.S.C. 280i–1) is amended—

(1)

in subsection (a)(1)—

(A)

by striking individuals with autism spectrum disorder or other developmental disabilities and inserting individuals with autism spectrum disorder and other developmental disabilities; and

(B)

by striking children with autism spectrum disorder and all that follows through disabilities; and inserting individuals with autism spectrum disorder and other developmental disabilities across their lifespan;;

(2)

in subsection (b)—

(A)

in paragraph (2), by inserting individuals with before autism spectrum disorder;

(B)

by redesignating paragraphs (4) through (6) as paragraphs (5) through (7), respectively; and

(C)

by inserting after paragraph (3) the following:

(4)

promote evidence-based screening techniques and interventions for individuals with autism spectrum disorder and other developmental disabilities across their lifespan;

;

(3)

in subsection (c)—

(A)

in paragraph (1), in the matter preceding subparagraph (A), by striking the needs of individuals with autism spectrum disorder or other developmental disabilities and their families and inserting the needs of individuals with autism spectrum disorder and other developmental disabilities across their lifespan and the needs of their families; and

(B)

in paragraph (2)—

(i)

in subparagraph (A)(ii), by striking caregivers of individuals with an autism spectrum disorder and inserting caregivers of individuals with autism spectrum disorder or other developmental disabilities;

(ii)

in subparagraph (B)(i)(II), by inserting autism spectrum disorder and after individuals with; and

(iii)

in subparagraph (B)(ii), by inserting autism spectrum disorder and after individuals with;

(4)

in subsection (e)—

(A)

in paragraph (1)—

(i)

in the matter preceding subparagraph (A), by inserting across their lifespan before and ensure; and

(ii)

in subparagraph (B)(iv), by inserting across their lifespan after other developmental disabilities;

(B)

by redesignating paragraphs (2) and (3) as paragraphs (3) and (4), respectively; and

(C)

by inserting after paragraph (1) the following:

(2)

Developmental-behavioral pediatrician training programs

(A)

In general

In making awards under this subsection, the Secretary may prioritize awards to applicants that are developmental-behavioral pediatrician training programs located in rural or underserved areas.

(B)

Definition of underserved area

In this paragraph, the term underserved area means—

(i)

a health professional shortage area (as defined in section 332(a)(1)(A)); and

(ii)

an urban or rural area designated by the Secretary as an area with a shortage of personal health services (as described in section 330(b)(3)(A)).

;

(5)

in subsection (f), by inserting across the lifespan of such individuals after other developmental disabilities; and

(6)

in subsection (g), by striking 2019 and inserting 2024.

(c)

Interagency autism coordinating committee

Section 399CC of the Public Health Service Act (42 U.S.C. 280i–2) is amended—

(1)

in subsection (b)—

(A)

in paragraph (2), by inserting across the lifespan of such individuals before the semicolon; and

(B)

in paragraph (5), by inserting across the lifespan of such individuals before and the families;

(2)

in subsection (c)—

(A)

in paragraph (1)(D), by inserting , the Department of Labor, the Department of Justice, the Department of Veterans Affairs, the Department of Housing and Urban Development, after Department of Education;

(B)

in subparagraphs (A), (B), and (C) of paragraph (2), by striking at least two such members each place it appears and inserting at least three such members;

(C)

in paragraph (3)(A), by striking one or more additional 4-year terms and inserting one additional 4-year term; and

(3)

in subsection (f), by striking 2019 and inserting 2024.

(d)

Reports to Congress

Section 399DD of the Public Health Service Act (42 U.S.C. 280i–3) is amended—

(1)

in subsection (a)—

(A)

in paragraph (1), by striking Autism CARES Act of 2014 and inserting Autism CARES Act of 2019; and

(B)

in paragraph (2)—

(i)

in subparagraphs (A), (B), (D), and (E), by striking Autism CARES Act of 2014 each place it appears and inserting Autism CARES Act of 2019;

(ii)

in subparagraph (G), by striking age of the child and inserting age of the individual;

(iii)

in subparagraph (H), by striking ; and and inserting ;;

(iv)

in subparagraph (I), by striking the period and inserting ; and; and

(v)

by adding at the end the following:

(J)

information on how States use home- and community-based services and other supports to ensure that individuals with autism spectrum disorder and other developmental disabilities are living, working, and participating in their community.

; and

(2)

in subsection (b)—

(A)

in the heading, by striking young adults and transitioning youth and inserting the health and well-Being of individuals with autism spectrum disorder across their lifespan;

(B)

by amending paragraph (1) to read as follows:

(1)

In general

Not later than 2 years after the date of enactment of the Autism CARES Act of 2019, the Secretary shall prepare and submit, to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, a report concerning the health and well-being of individuals with autism spectrum disorder.

; and

(C)

in paragraph (2)—

(i)

by amending subparagraph (A) to read as follows:

(A)

demographic factors associated with the health and well-being of individuals with autism spectrum disorder;

;

(ii)

in subparagraph (B), by striking young adults and all that follows through the semicolon and inserting the health and well-being of individuals with autism spectrum disorder, including an identification of existing Federal laws, regulations, policies, research, and programs;; and

(iii)

by amending subparagraphs (C), (D), and (E) to read as follows:

(C)

recommendations on establishing best practices guidelines to ensure interdisciplinary coordination between all relevant service providers receiving Federal funding;

(D)

comprehensive approaches to improving health outcomes and well-being for individuals with autism spectrum disorder, including—

(i)

community-based behavioral supports and interventions;

(ii)

nutrition, recreational, and social activities; and

(iii)

personal safety services related to public safety agencies or the criminal justice system for such individuals; and

(E)

recommendations that seek to improve health outcomes for such individuals, including across their lifespan, by addressing—

(i)

screening and diagnosis of children and adults;

(ii)

behavioral and other therapeutic approaches;

(iii)

primary and preventative care;

(iv)

communication challenges;

(v)

aggression, self-injury, elopement, and other behavioral issues;

(vi)

emergency room visits and acute care hospitalization;

(vii)

treatment for co-occurring physical and mental health conditions;

(viii)

premature mortality;

(ix)

medical practitioner training; and

(x)

caregiver mental health.

.

(e)

Authorization of appropriations

Section 399EE of the Public Health Service Act (42 U.S.C. 280i–4) is amended—

(1)

in subsection (a), by striking $22,000,000 for each of fiscal years 2015 through 2019 and inserting $23,100,000 for each of fiscal years 2020 through 2024;

(2)

in subsection (b), by striking $48,000,000 for each of fiscal years 2015 through 2019 and inserting $50,599,000 for each of fiscal years 2020 through 2024; and

(3)

in subsection (c), by striking there is authorized to be appropriated $190,000,000 for each of fiscal years 2015 through 2019 and inserting there are authorized to be appropriated $296,000,000 for each of fiscal years 2020 through 2024.

Speaker of the House of Representatives.

Vice President of the United States and President of the Senate.